Meet Hannah – Memoral Princess session

Hannah’s nominator Laura writes Hannah is known around ESP as a beautiful smile, a sweet hand to hold & a social butterfly. Hannah is a friend to all and never meets a stranger and for a good reason. Not only does Hannah have the personality to light up a room, but Hannah has grown up around “camp”. Hannah and her family have chosen to selflessly give their lives serving Camp Twin Lakes. Her dad, Dan, is the Camp Director and helps provide a residential facility for camps like ESP and others who serve children with terminal illnesses. Although the job began long before Hannah, it is through their selfless devotion that they were prepared to look at Hannah as a blessing. While her mother was ​18 weeks pregnant with Hannah, they received news that she has ​a partial midline-clef and ​could possibly have a number of other issues such a a brain disorder and a heart condition.  ​When she was born, Hannah‘s parents ​were overwhelmed yet thrilled that she was progressing despite her physical state such as ​being able to eat using a special bottle.  She was diagnosed with a rare and mild form of holoprosencephaly and they​were told at two weeks she may not live. At her two week check- up @  CHOA they​ were told she was losing weight but ​they​ refused to put her on a feeding tube and ​instead ​persevered. Hannah never had to use one. She soon started gaining weight and they​ figured out how to balance her calorie intake with the amount she burned eating. The​ family was told she would never walk and 18 months she started walking. Doctors said ​she would probably never talk due to her severe cleft and apraxia and while​ she is difficult to understand and her speech is limited, she is​ gaining ​more words and phrases daily!​ Despite​ 5 major surgeries, and several more still to come, Hannah ​is a very happy, energetic, joyful, and empathetic 7 year old little girl. She continues ​to prove doctors wrong. ​For this, I nominate the one who lights up a room, Hannah. I nominate her and her family for their dedication to such a worthy cause. Hannah and her family not only continue to journey through life despite these challenges while also making a difference in the life of others, but they do so with a smile.”

Listen to the wind as it rustles through the trees, often times it speaks of those who are leaving a lasting legacy. Listen, as it speaks about a little girl like no other. Oh how bright the eyes that illuminate her face! Oh how free the heart within her beats! To see her is to be in awe, for every breath she breathes is a miracle. Every smile an assurance of the same. Her very presence is a gift we are grateful to have. She dances to the beat of her own drum, and cares not about the pace, for she makes up her own. Her sister greets her with a bow, and together they walk side by side. Oh how strong the love shared between them is! It is truly a bond that cannot be severed.
Special needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.comSpecial needs princess photography - www.fairyography.com