Faith’s nominator Laura Whitaker writes “ESP has had a recent addition to our family. She is blond beauty and a little ball of joy that lives up to her name: Faith. Faith was born with a deletion of the 4th chromosome a very rare condition that doesn’t have a full lifespan and there is no official name for the condition. Faith has no speech and is challenged with developmental delays and mobility issues.  She began to sit at 3 years,  began crawling at 4 and walked at age 5. Faith attends doctors appointments every 6 months to test her liver and kidney due to other kids with the same diagnosis that have developed cancer. When Faith was born- the odds were against her. She was a preemie and did not grow or gain weight for weeks.  She spent many weeks in Augusta where they finally put a tube in her stomach so that she could get nourishment and grow.  She has had multiple surgeries and has recently had the tube removed. Faith attends Oconee county school and is 7 years old. Faith has overcome more odds in her 7 years than most people face in their entire life. She’s living up to her name, truly a daily walk of Faith.”

My session with faith was a ball of fun. She was SO excited to put on her dress and wings. The butterfly on the front kept falling off, but she’d tuck it under her little chin and hold it there so she’s have her hands free. Not afraid of anything, she bounced along through the 90F heat wave and bugs like it was nothing. Faith may not speak, but I know she’s really there on the inside.  She has this way of watching things that make you wonder what she’s seeing that you aren’t. I tell you, I could write a novel about her mother’s kindness to me and love for her daughter.

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6 Comments

  1. Audrey Blackwell Eady Reply

    These photographs are great! This little lady is such a beauty, and how these photos have captured her innocence and youth is really touching.

  2. What a beautiful, amazing girl she is. Her smile just lights up a room!

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